2nd World Conference Presentations
These presentations were delivered at the 2nd World Conference of the IASO in Washington DC, USA, 2-5 July, 2003. More will be added in the near future.
Scientific Programme Report, IASO/ASF Conference Washington DC July 2003
1st World Conference, Parent/Professional Presentations
These presentations were delivered at the 1st World Conference of the IASO in Tampere, Finland, 4-8 July, 2000
AS Associations
Advancement
of a National Angelman Syndrome Organization Through
the use of a Strategic Plan
Steven Katz*, ASF
The Need for Information
for Parents of Children with Angelman Syndrome: The Dutch
Angelman Syndrome Association
T. Stranders*, H.W. Borne van den, L.M.G. Curfs, Dutch Angelman Association,
Dutch Federation of Parents Organisations, Utrecht, The Netherlands, Department
of Health Education, Maastricht University, Maastricht The Netherlands, Clinical
Genetics Center
Maintaining
a Telephone Support Line and Producing a Regular Newsletter
Sally Walburn*, A.S.S.E.R.T., Basildon, United Kingdom
AS Resources
An Overview
of Angelman Syndrome Resources Available on the Internet
Frank van Hof, The Netherlands; Heikki Taimio, Vice-President, IASO, FASS,
Finland
Use of a
Listserve for Information and Support in Families of
Individuals with AS
Robin L. Alvares & Leigh Brezovsky: Department of Speech and Communication
Studies, Edinboro University of Pennsylvania, USA
Behaviour and Communication
An Evaluation
of Play Development in Children and Adolescents with
Angelman Syndrome
Angela Reason, B.A. (Hons), MSc.
Survey of Expressive
Communication Skills in Angelman Syndrome: an Update
Robin L. Alvares & Leigh Brezovsky
Education
Advocacy and
Education: How AS Families Can Help Establish School
Programs Best Suited to Their Children's Needs
Hal Lippman, USA
Teaching
a Child with Angelman Syndrome in the United States Public
Schools: Communication and Inclusion
Catherine Coleman*, Denise Byrne*, Falls Church City Public Schools, Oakton,
VA, USA
Son Rise - an
Alternative, Parent-Driven Therapy for Children with
AS
Martha Sprowles, USA; Tina Lockett, UK
Living with a Child who has Angelman Syndrome
Andrew
- a Gift of Love, Laughter and Hard Work
Simone Kennedy, Australia
Angelman Syndrome:
Family and Social Issues
Elfinn Faerevag, Haugesund, Norway
Living with Angelman Syndrome
A Description
of the Movie: A Good Life for Niklas
By Stefan & Inga-Lill Morell - Sweden
Designing
and Creating an Environment for Angelman Children
Juan J. Palomares Spanish Angelman Syndrome Association, Madrid, Spain
Family Adaptation:
Living, Loving and Angels
Sharon Katz, ASF
H.E.L.P.
(Hints and Ideas for Everyday Living for Parents of Angelman
Children)
Beth Sturr, USA
Medical Management
Sleep Problems
in Individuals with Angelman Syndrome
Joseph Wagstaff, University of Virginia School of Medicine, Charlottesville,
VA, USA
Scientific Questions & Answers
Scientfic
Questions & Answers
This Session was held from 09.45-10.30 on the 7th of July, 2000
Sibling Issues
Understanding,
Supporting & Empowering Siblings of Individuals with
Angelman Syndrome
Julie Hyman, M.S.W.
Summaries
Summary
of Parent/Professional Workshops
Martha Sprowles
Summary
of Scientific Workshops
Jill Clayton-Smith
Top of Page
